The Day After The Benefit
Of all days not to be remiss with my blogging this is it-- but there it is! Briefly, today is one of those days that epitomizes the word "salaried"-- work to be done and no help for it.
After the work was done, lunch, then over to Royce's for The Counting. The counting took a long time.
Suffice to say that the benefit was a success beyond our wildest dreams. We called Don in Columbia and he was very touched. He was also excited because when the occupational therapist came (while he was at lunch-- the nerve!--), Linda moved her right, index finger, and he missed it.
Linda moved her right, index finger. Because Linda is a writer, this improvement is truly one I have prayed for. The ability to type, to possibly maneuver an electric wheelchair... Well, who knows what this incredibly strong woman is capable of?
The doctor was overhead to tell a student, "You will really have to come in daily to see what progress this patient is making."
Last night at the Benefit, Mary told me that the next week or two is key: Some of the therapists reported that they usually have an indication within the first month of the range the patient is capable of.
But it seems safe to say that Linda has already surpassed her initial diagnosis of being truly Locked In.
What I have not yet said is that after The Counting, I just came home and crawled into bed, and my brain is still feeling a bit muddy. I will give you a detailed account of the benefit tomorrow (Going to see a play tonight), to share with those who could not be there. It was incredibly moving to see the Bindner family's reaction.
Kudos to Royce and Christine! A thousand thousand thanks to the bands, to Craig Shorten for donating the space and a portion of the drink profits, to Julia at Java Co. for the baked goods, Jeff and Brad at Il Spazio for the sushi-- that kept coming and coming.
And thank you to you, this wonderful, miraculous community that has rallied behind this family and made all of it possible.
Of all days not to be remiss with my blogging this is it-- but there it is! Briefly, today is one of those days that epitomizes the word "salaried"-- work to be done and no help for it.
After the work was done, lunch, then over to Royce's for The Counting. The counting took a long time.
Suffice to say that the benefit was a success beyond our wildest dreams. We called Don in Columbia and he was very touched. He was also excited because when the occupational therapist came (while he was at lunch-- the nerve!--), Linda moved her right, index finger, and he missed it.
Linda moved her right, index finger. Because Linda is a writer, this improvement is truly one I have prayed for. The ability to type, to possibly maneuver an electric wheelchair... Well, who knows what this incredibly strong woman is capable of?
The doctor was overhead to tell a student, "You will really have to come in daily to see what progress this patient is making."
Last night at the Benefit, Mary told me that the next week or two is key: Some of the therapists reported that they usually have an indication within the first month of the range the patient is capable of.
But it seems safe to say that Linda has already surpassed her initial diagnosis of being truly Locked In.
What I have not yet said is that after The Counting, I just came home and crawled into bed, and my brain is still feeling a bit muddy. I will give you a detailed account of the benefit tomorrow (Going to see a play tonight), to share with those who could not be there. It was incredibly moving to see the Bindner family's reaction.
Kudos to Royce and Christine! A thousand thousand thanks to the bands, to Craig Shorten for donating the space and a portion of the drink profits, to Julia at Java Co. for the baked goods, Jeff and Brad at Il Spazio for the sushi-- that kept coming and coming.
And thank you to you, this wonderful, miraculous community that has rallied behind this family and made all of it possible.
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