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Tuesday, March 09, 2004

Tuesday update

Today was Linda's first day with all three meals. Everything was pureed or thickened of course. She had biscuits and gravy for breakfast, chicken and mashed potatoes for lunch, and salmon (which wasn't that good) and cottage cheese and apple sauce for dinner. She ate a lot and got to skip some tube feedings today.

Her speech continues to improve. Her 'l' (ell) is very good as is her 'm' and 'n'. Interestingly enough she can pronounce words better when reading them than when looking at and naming an object. The speech therapist discovered that and it was really really surprising when she did. In general, most of her words are still indecipherable out of context, but you can often hear some of the consonant and vowel elements.

Linda's facial movements are becoming more expressive all of the time, although her expressions are somewhat more pure and unguarded than before. They're something like the expressions of a toddler, which have the same qualities. It's not that she can't hide her emotions (because she often does) and it's not that she can't lie, because she can do that too. Especially if it might get her food.

She was down today when she wasn't distracted by therapy. She is really understanding tangibly what being disabled might mean in terms of independence, even after a recovery, and that is very very hard for her. I can't really imagine it well. I had many of the same thoughts when Linda was still in the ICU and they were overwhelmingly sad for me. I couldn't even measure how much worse it must be for her.