Tuesday
Today was a very productive day. Obviously having Linda's feeding tube come out on its own was very convenient. She told me later in the day that it happened when the nurse came in at 4am to flush the tube with water. Apparently it was stopped somehow and the water forced it out. Pretty painful according to Linda, but I don't think the alternative was going to be great either.
Breakfast this morning included a bunch of new foods. Because of her good swallowing test yesterday, she got to have all of her liquids without thickener. This morning it was orange and pineapple juice and coffee. Because of a mixup, her tray came with soft food instead of puree food, including real biscuits and gravy and real waffles. I thought it was part of the order, so I fed it to Linda anyway. Luckily for her, the speech therapist was 15min late, because the ST was freaked out about it and ordered the kitchen to bring up some puree items instead. Linda ate both, and it went pretty well.
Linda also experimented today with a new assistive device for her arms. It's kind of a sling that hangs from a spring. The idea is that it gives her arm support while leaving her lots of degrees of freedom for movement. The OT suggested it for self-feeding, but Linda is also interested in using it for handwriting and for reading. We probably practiced with it for 2 hours today.
We were both pretty tired because we worked a lot even when there weren't therapies. Linda was pretty teary tonight. I finally told her that if she didn't stop crying I was going to wheel her around the halls in her chair. She'd have to behave better in public. We roamed the halls for about 30 minutes.
We started The Fellowship of the Ring on DVD tonight. You know Linda is tired when she will do something passive. Neither of us fell asleep during the first disk which is probably a small miracle. I'm not sure when we'll get to the second disk. Life is pretty busy around here.
Today was a very productive day. Obviously having Linda's feeding tube come out on its own was very convenient. She told me later in the day that it happened when the nurse came in at 4am to flush the tube with water. Apparently it was stopped somehow and the water forced it out. Pretty painful according to Linda, but I don't think the alternative was going to be great either.
Breakfast this morning included a bunch of new foods. Because of her good swallowing test yesterday, she got to have all of her liquids without thickener. This morning it was orange and pineapple juice and coffee. Because of a mixup, her tray came with soft food instead of puree food, including real biscuits and gravy and real waffles. I thought it was part of the order, so I fed it to Linda anyway. Luckily for her, the speech therapist was 15min late, because the ST was freaked out about it and ordered the kitchen to bring up some puree items instead. Linda ate both, and it went pretty well.
Linda also experimented today with a new assistive device for her arms. It's kind of a sling that hangs from a spring. The idea is that it gives her arm support while leaving her lots of degrees of freedom for movement. The OT suggested it for self-feeding, but Linda is also interested in using it for handwriting and for reading. We probably practiced with it for 2 hours today.
We were both pretty tired because we worked a lot even when there weren't therapies. Linda was pretty teary tonight. I finally told her that if she didn't stop crying I was going to wheel her around the halls in her chair. She'd have to behave better in public. We roamed the halls for about 30 minutes.
We started The Fellowship of the Ring on DVD tonight. You know Linda is tired when she will do something passive. Neither of us fell asleep during the first disk which is probably a small miracle. I'm not sure when we'll get to the second disk. Life is pretty busy around here.
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